Andrew was still awake when we got to the hospital. They haven't lowered his sedation at all (only the paralytic), so he's pretty out of it still, but he was able to move his fingers and toes, and definitely was looking around quite a bit. It was nice to see him awake again....it'll be four weeks tomorrow that he's been sedated and paralyzed. When we arrived, his heart rate was pretty high, though he wasn't showing any outward signs of being upset. We turned his music on and sat and talked with him for a little while....his heart rate lowered to a normal resting level. When D pulled out a book with pictures of dinosaurs, his eyes flickered all over the page. I also got some pictures, though I'm not sure how they turned out.
Before we left, we went through some range-of-motion exercises with his arms, massaged his arms and legs, and got a rainforest soother (it plays music and jungle noises) back into his crib. Just before leaving, I "hit the off button," which for him is a particular method of rubbing his head....it makes him fall right asleep. He was asleep and perfectly calm when we walked out the door.
He has continued to do well with his oxygen saturation and CO2 levels, and has been behaving well for the nurses. He's been stable and happy whenever we check in over the phone. We're not sure what the plan is for this week, but we'll have a meeting in a few days to discuss everything with the doctors.
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Thanks Jaime for posting that. Sounds like a great day. Reading it was a great way to start my week.
ReplyDeleteI'm so happy to hear you getting to be acting parents again as only you two can for Drew, though I'm sure not as happy as Drew. Best wishes and love for the week ahead. And many many dinos in Drew's future.
ReplyDeleteI am so glad to hear that he is awake and able to connect with you two again. I hope your dino-tastic pictures turn out, because I'm sure it was a lovely moment. And I wish I had an off button for falling asleep!!
ReplyDeleteThank you for sharing that with us. I can't imagine how challenging this time has been for you, but you beautifully described how there can be times of light in the midst of all the gray.
ReplyDeleteHe's all boy - loves his dinosauers but not as much as he loves his parents! This is a very happy post and a very happy day! I know there will be lots and lots more like it.
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