It's been a (physically) difficult week. D was sick last week, and I managed to catch it by last weekend. The symptoms started with a sore throat, which eventually got worse and added a painful cough/headache combination. To make things worse, I had to leave the house at 5:45 am on Monday and Tuesday, for all-day trips to Salt Lake City and Sacramento. Having gone to bed between 2 and 3am each day and not slept well due to coughing and wheezing, the trips were exhausting. I spent most of Wednesday on the phone and Thursday in Mountain View, and I still haven't caught up on sleep. Friday is another phone day, then I have to spend the weekend writing a chapter for my book project. Everything becomes much less fun when it feels like you're swallowing fire.
D dealt with all the side effects of sickness last week, and was also busy with softball. I went to their game on Saturday and watched them win a hard-fought contest against a very competitive school. On Sunday we went to Sea World, and we've been spending this week seeing each other whenever we could find the time. Next week I'm in Kansas and Las Vegas, so our schedules aren't clearing up any time soon.
I know there are worse problems to have, but I'm so exhausted that everything seems just a little more overwhelming than usual. For instance, I have to wrap this up before I fall asleep sitting up. G'night!
About Me
- JR
- D's husband. Andrew's dad. Son, friend, cousin, nephew, grandson....the list goes on.
About This Blog
This blog was originally created to disseminate information about Andrew, our son who was born on June 15, 2007. Andrew was born with a congenital diaphragmatic hernia (CDH) that allowed abdominal organs (stomach, intestines, etc) to migrate into his chest cavity during development. This prohibited normal lung growth, making it difficult for him to live without significant life support, including a ventilator, a lung bypass machine called ECMO, and a long list of medications.
Andrew spent the next five months at Rady Children's Hospital in San Diego, undergoing multiple operations for the hernia repair, intestinal rearrangement, stomach tube insertion, etc. Multiple attempts to help him breathe on his own without a ventilator were unsuccessful due to a number of anatomical and developmental difficulties. Andrew's failure to progress and an abundance of overwhelmingly unfavorable test results led us to remove him from life support and let nature take its course on November 19, 2007.
We greatly appreciate the time we were able to spend with Andrew, and this blog continues as a source for information, a tribute to his memory, and a continuation of our lives without him present. From the emotional to the mundane, our lives have been forever changed by his presence; those lives are now chronicled here.
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