Andrew had an okay day, mostly recovering from all the excitement of the last couple of days. He managed to lose another arterial line, get (and then have removed) another NG (nose-to-stomach) tube, get an IV and a transfusion, and have his vent tube re-taped. He was sedated for some of the above, so he's spending the rest of the time slowly coming down on his ventilator settings. It'll be a couple days before he's at minimal settings again, and then we can start talking about sprints. He started back up on small feedings today, and perhaps they'll be able to increase.
In general, he (and I) are pretty tired, so that's it for now.
About Me
- JR
- D's husband. Andrew's dad. Son, friend, cousin, nephew, grandson....the list goes on.
About This Blog
This blog was originally created to disseminate information about Andrew, our son who was born on June 15, 2007. Andrew was born with a congenital diaphragmatic hernia (CDH) that allowed abdominal organs (stomach, intestines, etc) to migrate into his chest cavity during development. This prohibited normal lung growth, making it difficult for him to live without significant life support, including a ventilator, a lung bypass machine called ECMO, and a long list of medications.
Andrew spent the next five months at Rady Children's Hospital in San Diego, undergoing multiple operations for the hernia repair, intestinal rearrangement, stomach tube insertion, etc. Multiple attempts to help him breathe on his own without a ventilator were unsuccessful due to a number of anatomical and developmental difficulties. Andrew's failure to progress and an abundance of overwhelmingly unfavorable test results led us to remove him from life support and let nature take its course on November 19, 2007.
We greatly appreciate the time we were able to spend with Andrew, and this blog continues as a source for information, a tribute to his memory, and a continuation of our lives without him present. From the emotional to the mundane, our lives have been forever changed by his presence; those lives are now chronicled here.
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