There wasn't much to say today, so I want to talk about tomorrow. I plan to post some pictures of Andrew tomorrow, and I wanted to give everyone a heads-up....the pictures are from after his breathing tube was removed. He was still very much alive at that point, but I know it may be too soon for some of you to even think about the end, and these pictures may stir up those thoughts. Personally, I think he looks beautiful and peaceful, and I know from being there that he was completely comfortable. He was on my lap the entire time. His face was a little red from the tape and his cheeks looked even bigger than normal; there was no tape to keep them under control. His upper lip is completely visible, and looks just like mine.
Anyway, the point is, don't tune in tomorrow if you don't want to see these pictures. Wait a couple of days and I'm sure there will be something more innocuous on the blog's front page.
About Me
- JR
- D's husband. Andrew's dad. Son, friend, cousin, nephew, grandson....the list goes on.
About This Blog
This blog was originally created to disseminate information about Andrew, our son who was born on June 15, 2007. Andrew was born with a congenital diaphragmatic hernia (CDH) that allowed abdominal organs (stomach, intestines, etc) to migrate into his chest cavity during development. This prohibited normal lung growth, making it difficult for him to live without significant life support, including a ventilator, a lung bypass machine called ECMO, and a long list of medications.
Andrew spent the next five months at Rady Children's Hospital in San Diego, undergoing multiple operations for the hernia repair, intestinal rearrangement, stomach tube insertion, etc. Multiple attempts to help him breathe on his own without a ventilator were unsuccessful due to a number of anatomical and developmental difficulties. Andrew's failure to progress and an abundance of overwhelmingly unfavorable test results led us to remove him from life support and let nature take its course on November 19, 2007.
We greatly appreciate the time we were able to spend with Andrew, and this blog continues as a source for information, a tribute to his memory, and a continuation of our lives without him present. From the emotional to the mundane, our lives have been forever changed by his presence; those lives are now chronicled here.
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